Inventory of Federal, Provincial and Territorial Environmental and Occupational Health Data
Sources and Surveillance Activities

Inventory of Data Sources

Fichier des Tumeurs du Québec (J65) (Québec Tumour File)

Contact
Michel Beaupré
Pilote d'orientation
Direction générale de la santé publique
Ministère de la Santé et des Services Sociaux
1075, chemin. Ste-Foy, 3^ième étage
Québec, QC
G1S 2M1
Tel: (418) 266-6739
E-mail: michel.beaupre@msss.gouv.qc.ca

Organization Maintaining the Database
Direction générale de la santé publique, Ministère de la Santé et des Services Sociaux(MSSS)

Purpose of Database
The database is a centralized system used to collect data on all new cancer cases reported annually in the province of Québec. The data are used for cancer surveillance, program evaluation, and epidemiologic research.

Content
Provincial, regional, and municipal data on all new cancer cases reported annually in the Québec population. Data types: epidemiologic, geographic, demographic. Person-level data with identifiers. Personal data: surname and given name, identification number, health insurance number, medical file number, name of father, name of mother, date of birth, sex, RCC identification, place of birth, unique identification number assigned by the Canadian Cancer Registry. Geolocators: municipal codes, postal codes, CLSC of residence (RSS-CLSC), hospital code, care section, CLSC of the hospital.

Medical data elements: cancer site, laterality, morphology, and behaviour; date of declaration, date of confirmation, date of hospital admission, date of release, date of death.

Approximately 35,000 records are added to the database every year.

Year Database Established
1969

Coverage Period
1975 to 1999 (The quality of data varies over time; generally, data from 1975 to 1983 are not exhaustive and can be difficult to use. Certain distinctive features can also apply depending on the cancer site in question).

Data Updates
Annually

Data Provider
Direction générale de la santé publique, Ministère de la Santé et des Services Sociaux (MSSS)

Data Availability
The main users of the information in the database are participants / interveners in the Québec health and social services network, regional public health branches, and university and hospital-based researchers. Only those responsible for upkeep of the databank have direct access to data. Protocol for use or release of the data falls under the regulations of the Commission d'accès à l'information du Québec.

Reports
" Surveillance du cancer au Québec: incidence et mortalité." Limits on use of the registry are described in this document. Website:
http://www.msss.gouv.qc.ca/f/statistiques/tumeurs.htm