Health Canada
May 2003
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A priority issue for the Canadian Caregiver Coalition is a national caregiving strategy and policy as a key element of home and community care 1. According to Statistics Canada, there are 2.85 million caregivers in Canada. In fact, 10% of all men in Canada are caregivers, approximately 1.5 million men. Caregivers are family members or friends who provide ongoing care and assistance, without pay, to those in need of support due to physical, cognitive or mental health conditions.
On May 2, 2003 in Ottawa, the Canadian Caregiver Coalition hosted the Roundtable on the Role of Men in Caregiving with generous funding from Health Canada. The Roundtable gathered policy analysts, researchers, Coalition partners, and other stakeholders for a one-day meeting
In plenary, the participants focused their discussion on the following five themes:
In keeping with the Coalition's priority for a national caregiving policy and strategy as a key element to home and community care and the discussion at the Roundtable, the Canadian Caregiver Coalition recommends the following pillars to support research, policy development, and service delivery that recognizes the contribution of both men and women as caregivers:
The Coalition is prepared to work with its partners and federal, provincial, territorial, and municipal governments to support the implementation of these recommendations.
A priority issue for the Canadian Caregiver Coalition is a national caregiving strategy and policy as a key element of home and community care 2. According to Statistics Canada, there are 2.85 million caregivers in Canada. In fact, 10% of all men in Canada are caregivers, approximately 1.5 million men. Caregivers are family members or friends who provide ongoing care and assistance, without pay, to those in need of support due to physical, cognitive or mental health conditions.
Since our inception in November 2000, the Coalition has been engaged in a variety of activities to build awareness and educate the public on the needs of caregivers. This report summarizes the proceedings of the Roundtable on the Role of Men in Caregiving hosted by the Canadian Caregiver Coalition on May 2, 2003 in Ottawa with generous funding from Health Canada. The Roundtable gathered policy analysts, researchers, Coalition partners, and other stakeholders (See Appendix A for a list of participants) for a one-day meeting
The Roundtable on the Role of Men in Caregiving was grounded with the presentation of early research results from a study being conducted by Dr. Lori Campbell of McMaster University (See Appendix B for the Slide Presentation).
In plenary discussion, the participants reviewed an initial list of possible themes for the day. The list was adopted with one addition and these five themes became the framework for the discussions:
The first task for the group was to create a list of possible research questions and policy issues for each theme area. This was accomplished with the use of small groups, each one spending about 10 minutes on each theme, brainstorming ideas for the list of questions and issues.
The second task was to create some structure and make some selections for possible priorities from the wealth of ideas generated in the brainstorming exercise. Participants self-selected into working groups based on the theme areas. They consolidated the ideas, created logical sequence patterns, identified short and long-term priorities, or developed frameworks for moving ahead in this area (See Appendix C for the Roundtable Agenda).
At the end of the day, the groups reported back and had a brief discussion on possible overall priorities. The Summary Report was distributed to participants with an opportunity for feedback. Finally, the CCC-CCAN Board of Directors made recommendations to Health Canada based on the results of the Roundtable. The recommendations include strategies for moving forward (See Appendix D for the Theme Discussion Notes).
Historically, women have played a critical role in providing care to dependent persons both in health care facilities and in the community. However, the context of care in Canada and other industrialized countries has changed considerably in recent decades. In Canada, more and more individuals are requiring care in the community, due both to the aging of the population and the shift in the provision of services from institutions to the community. The increasing labour force participation rates of women, increasing geographic mobility, and changing family networks are also impacting on the capacity of families to provide care 3. While women continue to provide the bulk of care to dependent adults (including seniors and others) living with health-related problems in the community, men also play an important role. In 1996, an estimated 39% of caregivers to seniors were men 4. Although men tend to be more involved in the provision of financial support, transportation, home repairs and maintenance, etc., these are all critical components in terms of maintaining people in their homes.
In the policy environment, federal, provincial and territorial governments have recently introduced initiatives from which some caregivers may benefit, including men who are caregivers. For example, the 2003 First Ministers Accord on Health Care Renewal includes a commitment to the creation of a five-year $16 billion Health Reform Fund targeted to primary health care, home care and catastrophic drug coverage, and the improvement of the basket of services offered for short-term acute home care. As confirmed in the federal budget of March 2003, other initiatives will include a compassionate leave benefit under the Employment Insurance program. At the provincial level, the governments of Ontario and Nova Scotia made 2003-2004 budgetary commitments to enhance tax support for family caregivers. The Quebec government's February 2003 changes to its labour standards include an extension of the reasons for family leave e.g. to include the health of a partner, parent, sibling, or grandparent.
To determine how governments could be more effectively support caregivers, we need to understand the impact of federal, provincial and territorial policies on men who are caregivers. We also need a clearer picture of the impact of private-sector policies (e.g. workplace) on men who are caregivers.
There are several policy areas that could be considered in a policy impact analysis, such as the following: home and community care, housing, transportation, financial compensation (direct and indirect), and workplace supports. It is worth noting that the program of Research on Aging, Policies and Practice, co-led by Dr. Norah Keating and Dr. Janet Fast, will provide important insights into the kinds of supports that are available for male (and female) caregivers in these broad areas, and how the eligibility criteria of existing policies in these areas influences access.
Any evaluation of the impact of public policy on men who are caregivers must take into account the diversity of this group. Male caregivers are not a homogeneous group, and no single policy option will meet their diverse needs. The availability of services for men who are caregivers may differ depending on place of residence (e.g. rural/remote). Ethno-cultural considerations must also be taken into account (e.g. ethno-cultural attitudes towards men as caregivers, availability of culturally-sensitive community supports for men who are caregivers, inclination of men from different ethnic backgrounds to access caregiver services, etc). Consideration might also be given to the potential role of technology, such as the Internet and tele-health to help ease the caregiving consequences experienced by men.
| Themes | Research Questions | Policy Issues | Potential Partners, Opportunities, Funding Agencies |
|---|---|---|---|
| Service Access and Utilization - the interface with the health care system |
|
See Diagram on Page 7 |
Investigators: Guberman, Keefe Funders: CIHR, Health Canada, Alzheimer Society, Pharmaceutical Companies, Foundations including the McConnell Foundation Opportunities:
|
| Broad Societal and Dominant Culture Perspectives on Men and Caregiving |
|
|
Investigators: Jean - Pierre Lavoie, Nancy Guberman, SANT Funders: CIHR, Institute of Gender and Health, Status of Women in Canada Participant or Community Representative: CCC-CCAN, Vanier Institute for the Family |
| Caregiving Relationships - family and system and the impact of care |
|
|
|
| Profile of men who care and their needs |
|
|
* It was noted that the 2002 General Social Survey would have this information. Expected to be released June 2003 by Statistics Canada Investigators: Veterans Affairs Canada, Campbell, Keefe, Chappell, Keating/Fast, Canadian Association for Community Care, Health Canada, Matthews (siblings), and Harris Funders: Veterans Affairs Canada, Health Canada, Canadian Institutes for Health Research, SSHRC, Health groups, such as Alzheimer Society, MS Society, and McConnell Foundation Community Representatives: VAC, CCC-CCAN, CACC, Health groups, Health Canada, HRDC, CAG |

There are obvious linkages, overlaps and priorities. The following were the reflection of participants at the end of the Roundtable including:
Linkages:
Common aspects for both men and women
Responsibility for care
Overlaps between Theme Areas:
Who - what men are caregivers?
Types of care?
Definition of "family"
Rural/remote
Diversity - multi-faceted
Public / private responsibility for care
Assess what are the needs of men who are caregivers
Any Obvious Priorities:
Profile of men who provide care and types of care
Assumptions we make and how the system interacts with men who are caregivers
Data collection
Argument for services
Evaluation of programs and services
Impact of different policies on men
In keeping with the Coalition's priority for a national caregiving policy and strategy as a key element to home and community care and the discussion at the Roundtable, the Canadian Caregiver Coalition recommends the following pillars to support research, policy development, and service delivery that recognizes the contribution of both men and women as caregivers:
The Coalition is prepared to work with its partners and federal, provincial, territorial, and municipal governments to support the implementation of these recommendations.
Barbara Power-Newton
Senior Policy Analyst
Health Canada
Palliative and End of Life Care Secretariat
Tunney's Pasture, P.L. 0910 D
11 Holland Avenue, Tower A, Suite 702
Ottawa, ON K1A 0K9
Phone: (613) 957-1057
Fax: (613) 954-9429
Email: barbara_power-Newton@hc-sc.gc.ca
Beatrice Mullington
Manager
Health Canada
Home & Continuing Care Unit
11 Holland Avenue, Tower A, Rm 709
Tunney's Pasture, P.L. 0910 D
Ottawa, ON K1A 0K9
Phone: (613) 957-8666
Fax: (613) 957-3233
Email: beatrice_mullington@hc-sc.gc.ca
Bonnie Schroeder
Secretariat
Canadian Caregiver Coalition
110 Argyle Avenue
Ottawa, ON K2P 1B4
Phone: (613) 233-8825 Ext. 252
Fax: (613) 230-4376
Email: ccc_ccan@von.ca
Catherine Larmer
Policy Analyst
Health Canada
Division of Aging & Seniors
Tunney's Pasture, D.L. 1908A1
Ottawa, ON K1A 1B4
Phone: (613) 952-8323
Email: catherine_L_ Larmer@hc-sc.gc.ca
Catrina Hendrickx
Policy Analyst
Health Canada
Home and Continuing Care
11 Holland Avenue, Tower A, Rm 709
Tunney's Pasture, P.L. 0910D
Ottawa, ON K1A 0K9
Phone: (613) 954-8616
Fax: (613) 954-9429
Email: catrina_Hendricks@hc-sc.gc.ca
Christine Touchette
Social Worker
CLSC René Cassin
Caregiver Support Centre
2nd Floor, 5800 Cavendish Blvd.
Montreal, QC H4W 2T5
Phone: (514) 488-9163
Fax: (514) 489-6675
Email: christine.touchette@ssss.gouv.qc.ca
Claire Checkland
Programs Consultant
Canadian Aids Society
309 Cooper Street, 4th floor
Ottawa, ON K2P 0G5
Phone: (613) 230-3580 ext. 126
Fax: (613) 563-4998
Email: clairec@cdnaids.ca
Duncan Conrad
Program Consultant
Veterans Affairs Canada
Program and Service Policy Division
Charlottetown, PEI C1A 8M9
Phone: (902) 566-8111
Fax: (902) 566-8039
Email: dcconrad@vac-acc.gc.ca
Esther Roberts
Vice-President
Canadian Caregiver Coalition
Veterans Affairs Canada Project Coordinator
110 Argyle Avenue
Ottawa, ON K2P 1B4
Phone: (613) 233-8825 Ext. 242
Fax: (613) 230-4376
Email: robertse@von.ca
Faye Porter
National VP, Volunteer Development and Branch Support, Western Region
VON Canada
110 Argyle Avenue
Ottawa, ON K2P 1B4
Phone: (613) 233-8825 Ext. 257
Fax: (613) 230-4376
Email: porterf@von.ca
Gabriel St. Rome
Male Caregiver
c/o CLSC René Cassin
Caregiver Support Centre
2nd Floor, 5800 Cavendish Blvd.
Montreal, QC H4W 2T5
Phone: (514) 488-9163
Fax: (514) 489-6675
Email: Christine.touchette@ssss.gouv.qc.ca
Heather Davis
Senior Policy Advisor
Health Canada
Home & Continuing Care Unit
11 Holland Avenue, Tower A, Rm 709
Tunney's Pasture, P.L. 0910D
Ottawa, ON K1A 0K9
Phone: (613) 941-9836
Fax: (613) 957-3233
Email: heather_davis@hc-sc.gc.ca
Ilona Horgen
Director, Support Services & Education
Alzheimer Society of Canada
Suite 1200, 20 Eglinton Avenue West
Toronto, ON M4R 1K8
Phone: (416) 488-8772
Fax: (416) 488-3778
Email: ihorgen@alzheimer.ca
Janice Keefe
Associate Professor
Mount Saint Vincent University
Department of Family Studies & Gerontology
166 Bedford Highway
Halifax, NS B2M 2J6
Phone: (902) 457-6546
Fax: (902) 457-6134
Email: janice.keefe@msvu1.ca
Jean Kammemayer
Senior Policy Analyst
Health Canada
Women's Health Bureau
3rd floor Jeanne Mance Bldg
Tunney's Pasture
Ottawa, ON K1A 0K9
Phone: (613) 941-1780
Fax: (613) 952-3496
Email: jean_kammermayer@hc-sc.gc.ca
Jean-Pierre Lavoie
Direction de Sante
Direction santé publique Montréal-Centre
1301, Sherbrooke est
Montreal, QC H2L 1M3
Phone: (514) 528-2400 p. 3370
Fax: (514) 528-2426
Email: jplavoie@santepub-mtl.qc.ca
Lori Campbell
Professor
McMaster Centre for Gerontological Studies
1280 Main Street West, KTH-230A Hamilton, ON L8S 4M4
Phone: (905) 525-9140
Fax: (905) 525-4198
Email: lcampbe@mcmail.cis.mcmaster.ca
Lorna Hillman
Executive Director
Family Caregivers' Network Society and President, Canadian Caregiver Coalition
526 Michigan Street
Victoria, BC V8V 1S2
Phone: (250) 384-0408
Fax: (250) 361-2660
Email: fcns@telus.net
Michelle Gibbens
Project Manager
Multiple Sclerosis Society of Canada
764 School Road
Winnipeg, MB R2Y 0S5
Phone: (204) 885-5315
Fax: (204) 837-9773
Email: michelle.gibbens@mssociety.ca
Nancy Swainson
Director
Health Canada
Primary Health Care Division
Jeanne Mance Building, 10th floor, Rm 1017A
Tunney's Pasture
Ottawa, ON K1A 0K9
Phone: (613) 954-0834
Fax: (613) 954-1447
Email: nancy_swainson@hc-sc.gc.ca
Natalie St. Lawrence
Senior Policy Analyst
Health Canada
Women's Health Bureau
3rd floor Jeanne Mance Bldg
Tunney's Pasture
Ottawa, ON K1A 0K9
Phone: (613) 957-1944
Fax: (613) 952-3496
E-mail: Natalie_st_Lawrence@hc-sc.gc.ca
Neera Singh
Policy Analyst
HRDC
Seniors Directorate
Income Security Programs
355 River Road, 18th Floor Tower B
Vanier, ON K1A 0L4
Phone: (613) 946-1267
E-mail: neera.singh@hrdc-drhc.gc.ca
Norah Keating
Professor, Department of Human Ecology
University of Alberta
Edmonton, AB T6G 2N1
Phone: (780) 492-4191
Fax: (780) 492-4821
E-mail: norah.keating@ualberta.ca
Paule Giguere
Policy Analyst
Health Canada
Office of Rural Health
Jeanne Mance Building, Rm 1552C
Tunney's Pasture
Ottawa, ON K1A 1B4
Phone: (613) 941-7560
Fax: (613) 946-5686
Email: Paule_giguere@hc-sc.gc.ca
Sandra MacLeod
Senior Policy Analyst
Health Canada
Home and Continuing Care
11 Holland Avenue, Tower A, Rm 709
Tunney's Pasture, P.L. 0910D
Ottawa, ON K1A 0K9
Phone: (613) 941-5217
Fax: (613) 954-9429
Email: Sandra_macleod@hc-sc.gc.ca
Taylor Alexander
President and CEO
Canadian Association for Community Care
Suite 520, 1 Nicholas Street
Ottawa, Ontario K1N 7B7
Phone: (613) 241-7510
Fax: (613) 241-5923
Email: t.alexander@cacc-acssc.com
Alma Favel-King
National Home and Community Care Coordinator
Assembly of First Nations
No. 1 Nicholas Street
Ottawa, ON K1N 7B7
Phone: (613) 241-6789 ext. 381
Fax: (613) 241-5808
Email: afavel-king@afn.ca
Ross Hammond
Facilitator
75 Preston Street
Ottawa, ON K1R 7N8
Phone: (613) 233-8635
Email: crh1@cyberus.ca
1 CCC-CCAN. (2002). Calling for a national caregiving policy: A prerequisite for home and community care.
2 CCC-CCAN. (2002). Calling for a national caregiving policy: A prerequisite for home and community care.
3 Janet Fast and Norah Keating, Family Caregiving and Consequences for Carers: Toward a Policy Research Agenda, CPRN Discussion Paper No. F/10, 2000, p. 5.
4 Janet Fast and Norah Keating. (2000).